Thursday, 7 February 2013

Liverpool Care Pathway - Of Deception And Infamy (Part II)


On Friday, 25 January 2013 the email correspondence reproduced below was published on these pages.
On 5 February 2013, Margaret Kendall posted an annotation to a freedom of information request by Dr. Lofthouse. This was brought to my attention as a comment she made appeared to allude to me. I responded to this with an annotation. 

Margaret has now responded to this with a further annotation.

These annotations are also reproduced below.

Margaret, I am responding to you here because I do feel that, since the FOI request by Dr. Lofthouse was made to the Department of Health (DoH) and that the DoH and their 'umbrella' organisations were responsible for giving the group(s) which you chair a hearing and publishing their views, thereby awarding them some measure of authority, authenticity and good standing, it should be the DoH which responds to Dr. Lofthouse and not your good self.

Margaret, I have directed you to these pages in my annotation. My response to you, Margaret, also follows below as the FOI site is really not the place for you to conduct your tirade....


Liverpool Care Pathway - Of Deception And Infamy
There are famous - and infamous - tales of deception and counter-deception from times of war, of one side attempting to hoodwink and out-best the other to gain some advantage of strategy. One such tale from the Second World War was made into a film called, "The Man Who Never Was".

No war is good, but sometimes it is necessary to fight the good fight and that has to be what the Second World War was about.

No battle is undertaken lightly, but battle we must and stand up and be counted amongst those few who will stand up and be counted and, with righteous anger, declare a wrong to be wrong!

No war is good but that is what we fight, and it is the good fight we fight. And this tale we tell is also of deception and counter-deception. The tale - "The Group That Never Was" (a.k.a. The Once and Future Group).

The tale begins with an email from the nurse consultant group...

            NURSE CONSULTANT GROUP.‏

Kendall, Margaret (Margaret.Kendall@whh.nhs.uk)
03/01/2013
Good morning, 

Your email has been passed to me from Kate Henry at EOLC team.

I chair the group. How may I help you?

Margaret 

Margaret Kendall
Consultant Nurse In Palliative Care / End of Life Care Lead
Office 10
1st floor Postgraduate Education Centre
Warrington and Halton Hospitals NHS Foundation Trust
Lovely Lane
Warrington 
Cheshire
WA5 1QG
Tele: 01925 275298
Fax: 01925 662347
Bleep 891

................................................................................................

Good Morning.

Thankyou for contacting me regarding my query.

May you assist in the following matter, please?

I am attempting to clarify the actual status of the following named groups, their constitution and membership, in order to validate their existence. They are each named as co-authors or made as reference of at least one publication.
  1. The National Nurse Consultant Group (Palliative Care) 
  2. The Consultant Nurses in Palliative Care Reference Group 
  3. The National Palliative Care Nurse Consultant Group
  4. The National Group of Palliative Care Nurse Consultants
  5. The National Group of Palliative Care Nurse Consultant

Do they exist independently or is one a misnomer for one or more of the aforementioned? If independent organisations, how may they be contacted, please, in order to ascertain their constitution and status?

Many thanks.

................................................................................................

From: Kendall, Margaret [mailto:Margaret.Kendall@whh.nhs.uk] 

Good morning,

I can confirm that the groups mentioned in 1-5 below are the same group of which I am chair. Our terms of reference are as follows:

Our purpose as a group of nurse consultants is to promote palliative care nursing within a multi-professional context

AS NURSES IN PALLIATIVE & END OF LIFE CARE WHAT DO WE DO?

Our terms of reference are as follows:

· To provide a critical body of expert nursing opinion
· To influence nursing practice at local, network & national levels
· To articulate nursing practice to influence policy
· To identify areas of nursing practice in need of further development by research and education
· To contribute a nursing voice to debate affecting delivery of palliative and end of life care
· To provide diverse nursing knowledge and expertise supporting service development

I hope this clarifies.

Margaret

Margaret Kendall

Consultant Nurse In Palliative Care / End of Life Care Lead

................................................................................................

Good evening,

Thankyou for your kind response.


You state that the groups mentioned in 1-5 below are the same group of which you are chair. May I ask what is the formal name of the group, please?

Further to my email, is the group formally structured, please? Is there a board of members and what is its make-up? What formal qualifications do they hold? To whom is membership open and what is the extent of that membership?

On what basis did the DoH and NHS commission your group to write care documents for publication? Does the group receive funding for its work and from whom? Is the group registered as Data Controllers with the Information Commissioner's Office?

Many thanks.

................................................................................................


From: Kendall, Margaret [mailto:Margaret.Kendall@whh.nhs.uk]

can i please ask who you are before I respond further.

Margaret Kendall

................................................................................................

Good evening,

Thankyou for your kind response. I am requesting this information as an interested member of the public...


You state that the groups mentioned in 1-5 are the same group of which you are chair. May I ask what is the formal name of the group, please?


Further to my email, is the group formally structured, please? Is there a board of members and what is its make-up? What formal qualifications do they hold? To whom is membership open and what is the extent of that membership?


On what basis did the DoH and NHS commission your group to write care documents for publication? Does the group receive funding for its work and from whom? Is the group registered as Data Controllers with the Information Commissioner's Office?

Many thanks.


................................................................................................

From: Margaret.Kendall@whh.nhs.uk

Thank you,

The group is made up of 26 consultant nurse in palliative care who are employed either by acute trusts, primary care trusts or independent hospices.

We are all highly experienced nurses who have worked In the field of palliative care for many years prior to assuming these roles.

The name of the group as you can tell has been under many guises, but the final agreement on a definitive name will be debated at our next meeting March.

As we are all clinical nurses there is no board formulation. We have a chair and a secretary for administrative purposes only. We meet to debate and support palliative care initiatives and to initiate best practice models where none may currently exist.

Neither the DoH or NHS commission work from the group but we work alongside the National End of life Care team to provide the clinical voice for new developments and reviews. Occasionally the DoH ask for a representative from the group to sit on working parties or review panels to provide the clinical nursing input.

We receive no funding whatsoever either for work that we do or for our meetings.

Regards,

Margaret

Margaret Kendall
Consultant Nurse In Palliative Care / End of Life Care Lead


margaret Kendall left an annotation ( 5 February 2013)



I am the margaret Kendall who chairs the consultant nurse group. I am not the M kendall cited by Dr Loftus as an academic.I have never worked in scotland and have been employed within the NHS since 1972.I believe that Dr loftus has googled the name and put two and two together and made 6! I have responded to several anonymous freedom of information requests recently,some forwarded by DoH, in particular to someone who has named himself as an interested menber of the public I suspect this may be Dr Loftus as the questions he poses have been very similarto those requests. I have been open and honest with all enquiries and would expect the same courtesy back from all sources. The consultant nurse group has never been funded or commissioned to do any work for the DoH. We work alongside organisations who approach us, not the other way around, to add comment to or contribute to the debate around palliative and end of life care issues using our clinical knowledge ,skills and expertise in palliative care as we all currently work within that environment. I refute the accusations made by Dr loftus about me personally and the activities of the group and would welcome the opportunity to put the true facts on this site.


Les Doe left an annotation ( 6 February 2013)



I am responding to Margaret Kendall's annotation of 5 February 2013 which has been brought to my attention. I believe that I may be the ‘interested member of the public’ to which she refers.

My initial contacts were via Kate Henry and a generic contact email supplied on the website. It was Kate Henry who referred my emails to you, Margaret, as you know.

Email correspondence then duly followed. If you refer to my emails, Margaret, you will see that I contacted you via my personal account and then, when I experienced problems with this (Good old Hotmail), via my work account.

Margaret, you emailed me, and I quote: “can i please ask who you are before I respond further”

I then replied, and I quote: “Thankyou for your kind response. I am requesting this information as an interested member of the public...”

You then kindly responded with the information I summarise here ( and which you can read in full at http://liverpool-care-pathway-a-national...) -

It is now established that the six groups named here –

1. The National Nurse Consultant Group (Palliative Care)
2. The Consultant Nurses in Palliative Care Reference Group
3. The National Palliative Care Nurse Consultant Group
4. The National Group of Palliative Care Nurse Consultants
5. The National Group of Palliative Care Nurse Consultant
6. The nurse consultant group

are one and the same group chaired by Margaret Kendall.

It is now established that these six named groups have not existed officially under any name at all as this matter is still to be decided at their next meeting in March.

It is now established that this group chaired by Margaret Kendall has had many names and yet has had none.

It is now established that this anonymous anomality of non-persona have had authored and co-authored work published, given evidence to a House of Lords Select Committee, submitted expert opinion, and been cited in reference.


margaret Kendall left an annotation ( 7 February 2013)



the name of the group "National Nurse Consultant Group (palliative Care) has existed from the outset. The "non persona" were invited to give evidence to the House of Lords select commitee and to provide a body of evidence as per our terms of reference.

Our purpose as a group of nurse consultants is to promote palliative care nursing within a multi-professional context

AS NURSES IN PALLIATIVE & END OF LIFE CARE WHAT DO WE DO?

Our terms of reference are as follows:

• To provide a critical body of expert nursing opinion

• To influence nursing practice at local, network & national levels

• To articulate nursing practice to influence policy

• To identify areas of nursing practice in need of further development by research and education

• To contribute a nursing voice to debate affecting delivery of palliative and end of life care

• To provide diverse nursing knowledge and expertise supporting service development

If we do not exist why were we invited to give evidence, provide a body of expert opinion or publish work alongside statutory bodies? why would we have terms of reference?
I indicated the issue of the multi names would be debated at our next meeting not that we did not have a name.
This debate is now getting rather tiresome and I will be making no further comments on the issue until I have consulted with my nurse consultant colleagues and the National End of life care team who do appear to value the work and contribution the group make.

Margaret, I have not said you do not exist or do not have a name. I said that "these six named groups have not existed officially under any name at all as this matter is still to be decided at their next meeting in March". And that is the case, as you have stated.

Margaret, following on from this, why were you, in particular, invited to give evidence, provide a body of expert opinion and work alongside statutory bodies?

Margaret, were any individual to award themselves any number of diverse aliases in like fashion as has/have the body/bodies you claim to represent, it would likely be suspected that some fraud was being enacted or perpetrated and the police would be called in to deal with it.

Margaret, why use diverse aliases in like fashion, unless it is thereby to deceive and mislead that the body of opinion you support and promulgate has wider, broader support than is actually the case?

Margaret, you had already awarded yourself/selves five august sounding titles. You responded to my email with a sixth!

What is going on, Margaret?

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